Monday, June 21, 2010

Caden's Bear

Caden's bear along with a bouquet of yellow roses were put on top of his casket with his yellow quilt. The bear now represents Caden and will be treasured always. He will now be in all of their family pictures.
Yellow roses grow in heaven, Lord pick a bunch for me. Place them in Caden's arms and tell him they're from me. Tell him that I love and miss him. When he turns to smile, place a kiss upon his cheek and hold him for awhile, because remembering him is easy, I do it every day. There's an ...ache in my heart that will... never go away.

Sunday, June 13, 2010

Remembrance Video

We love you Caden, you have touched our lives in so many ways. God be with you till we meet again.

I am a child of God and He has called me home.
My earthly journey's through but still, I do not walk alone.
He leads me, guides me, walks beside me, helps me find the way.
He welcomed me with open arms. I live with Him today.

I am a child of God and I have gone ahead.
My earthly life was brief but oh, such peace and love you gave.
You loved me, held me, stood beside me and though I cannot stay.
You gave me much to help me and I live with Him today.

I am a child of God and I will wait for you.
Celestial glory shall be ours, if you can but endure.
I'll lead you, guide you, walk beside you.
Help you find the way.
I'll welcome you with open arms
One bright Celestial day.

Tuesday, June 8, 2010

Funeral arrangements Saturday June 12, 2010

Saturday June 12, 2010
LDS church building
Gila River Ward
4125 W. Baseline Road
Phoenix, AZ 85042

The family viewing is from 10:00-10:30am

Family and friends viewing is between 10:30-11:15am

Family Prayer- 11:15-11:30am

Funeral- 11:30-12:30

Holy Cross cemetary
10045 West Thomas Road
Avondale, AZ 85392

We need to be at the cemetary by 1:30pm. We have to done by 2:00pm

There will be a family luncheon at our ward building in Laveen at 2:45pm

Thoughts on Caden

Thank you everyone who has helped out our Family while Caden was in the hospital, it has truly meant the world to us. Things are very difficult at this time, and it is a real effort to hold together right now. We know that he is where he is needed right now and that he loves us, and we know we will be reunited with Caden when we pass on as well, we have incredible and the only possible lasting comfort from that knowledge. But it still does not take the wound away completely, I feel that the pain won't truly be healed until we are with Caden again and with our Family forever. Words cannot truly or accurately describe the depth of feelings both spiritual and temporal which flow through you at a time like this, having no other experience to compare it to, I feel there is a reason for all of this and intend on using this opportunity to draw closer to Caden and to Jesus Christ in those feelings and times in which words fail but the spirit and the depths of the heart do not. You pour your heart, spirit, love, wishes, hopes, dreams, and purpose into your children and something like this is very deeply affecting, but Caden still has all of those things with him from me and Jessica, this event does not change that. It will just be a day to day path back to him, it's not all downhill or uphill from here, but the presence of our loved ones around our family will help guide us down the path that ultimately leads back to him. There will be good days and there will be bad ones, I really believe I will be needing to visit with Caden a lot through prayer and through the Temple, he will continue to be an integral part of our Family in the years to come. Nothing in life focuses your purpose and literally everything you do as does the desire and goal for the true happiness of your children, either here on Earth or waiting patiently for you on the other side, the purpose is the same. We love you Caden and we know you love us, we are doing our best right now, please don't be too sad for us and the way we feel, we just miss you a lot right now but I promise it will get easier every day that passes, the closer it gets to seeing you again.

Tommy Johnson

Monday, June 7, 2010

Caden Lee Johnson

Hi everyone, Caden fought long and hard during the night with complications related to his Septic Shock and lack of Immune System. He finally passed away at about 12:30pm today during a very high-risk surgery which we opted for as an alternative to him passing away anyway due to fatal lactate levels after possibly only another hour or two. Caden was sedated and in comfort when he passed away, and we were able to talk to him and hold him, I was able to give him a Father's blessing earlier before surgery as well. We know that Caden is where he needs to be right now, we know he was only meant to be with us here on earth for a short time, but we were able to spend some great times with him after his surgery about a month ago where for the first time in a long time he was smiling, laughing and very happy to be with us. We know he loves us and that he is now waiting for us, it will be difficult for us to get past this trial in our lives, but we take comfort in the fact that we know we will in fact see him again some day and that we will be so happy to see each other at that time. I don't know what we would do if we didn't have that faith, belief and knowledge, it would truly be more unbearable than I can even imagine. He is such a perfect little boy and has shown so much strength and courage to us during recent times, he is with Heavenly Father, Jesus Christ and his passed away family members right now, we know that for a surety. Thanks everyone for all your tremendous love and support during these tough times, it has really been incredible to see everyone coming together for us and Caden recently, it builds our testimony so much. We will update on funeral arrangements, etc. as soon as they are established. We love you so so much Caden, and we can't wait to see you again, you have taught us so much and brought us so much happiness and love, we will see you again soon!

Tommy Johnson

Sunday, June 6, 2010

Caden in the PICU

Caden was moved into the Pediatric ICU last night as he was very pale, his blood pressure was pretty low and he was becoming very lethargic. When we arrived the doctors and nurses swarmed over him to stabilize his condition, thankfully, this morning things seem to be beginning down the right direction. Apparently Caden's infection caused him to go into "Septic Shock" or a poisoning of the blood by uninhibited bacteria because his Immune system had been virtually reduced to nothing by the recent Chemotherapy treatments, and his body had no way of fighting back properly. He is currently on medications and therapies which are doing a number of things, including maintaining and increasing his blood pressure and oxygen/blood concentration, artificial respiration, triple antibiotic treatments to fight the infection, and several others. He is still very sick and it will be some time before he becomes better especially with no immune system to speak of, and his little body will have more hurdles to overcome in the coming days, and there are other dangers present and possible in the next several days. I credit the expertise and spectacular response of the ICU doctors in Caden's change in condition from last night, they have truly been amazing in their care of Caden, it was awe inspiring to see them work around the clock to help him so much. Thanks for all your prayers and everything else you have done and are still doing for us!!!

Saturday, June 5, 2010

Caden had to go back into the NICU this evening. His blood pressure went very low, I just talked to Jessica about a half of an hour ago, his blood pressure is going back up. That was sooo good to hear!!

Thursday, June 3, 2010


Caden had his 5th Chemo treament yesterday. He is throwing up more, 4 times yesterday. It really upsets him but Jessica and Tommy are right there to console him. What great parents they are!! I (Kathy) have been sick with a cold and haven't been able to be with Jessica during the day. I hope I get better real soon so I can go back up there to help her care for Caden and give her someone to visit with. Those are long days and nights at the hospital. Jessica got some cute pictures, we will add them soon. They still get some smiles from him from time to time. We sure love our Caden, its hard to see him going through this. Our emotions are like a roller coaster, but we are trying very hard to stay positive. I feel like everything is going to turn out wonderful for our little fellow!! He is as precious as they come, of course I am MIMI!!

This is my big sister

This is my big sister Carlee. She likes to hold me but when she is done I sure am glad that mommy is close by so she can catch me!! Carlee goes back and forth to our two Mimi's. She loves it at their houses, she said it is so much fun staying at our Mimi's house because she loves to make messes,especially with their water, water coolers are the best!!! Its keeping our Mimi's young!! I sure love my big sister, she likes to give me kisses!

Tuesday, June 1, 2010

Caden is going to have his 4th chemo treatment today. He has been throwing up at least 1X a day. Poor little guy, I feel so bad for him. I wish I could take away his pain. I think every mother feels that way when there child is sick. He has his happy moments through out the day. He loves when I talk and sing to him. Even though I might not have the best singing voice Caden still loves it. The nurses, Doctors and staff have been so good to us. This morning Caden's nurse saw me walking the hall for a while and asked me if she could take him for a while so I could get some sleep. At first I said, "no that is ok". About 10 minutes later I went out to the nurses station and asked her and she said, Sure I would love to hold him. They love babies around here. She said that alot of the babies that are here have to stay in there rooms in isolation. So when they get a chance to hold a baby they love it. I was able to sleep about 45 minutes, then I heard him crying. I went out there and I took him and he seemed to calm down a bit. All the nurses said he just wanted his mama. What he really wanted was some pain medicine. They gave him some morphine and that made him happy. Well we will see what today brings.